I have a big calender where, every night, I write down what Ada had done today that different than yesterday. A tiny step but a giant one for her. For example, on Sunday she respond by blinking her eyes when we wave our hand in front of her. Yesterday she bend her right arm more and she can get her hand almost to her chest. With fear and frustration in her eyes, I have to look away. She also starts showing some emotion through her face. We decided to cut her medication in half to see if there is something more she can do. Sure there is another factor of "pain" that we do not know of, pain medicine and anti-depression drug will be given to her.
I have to say that Ada had received the best care that the staffs at American Village can offered. All the questions, all the concerns that I have, had been answered. Everyone is working tirelessly to take care of her. Thank you, thank you.
Today we put her on the chair. It is a special recliner on wheel that can be adjusted to any position. She looks comfy in the chair and fell asleep the whole time. Adding the portable humidifier machine, we can wheel her out of the room to meet her neighbors or even go outside when it is warm. They also weight her today. The liquid, high protein, and non-fat food that she has, does not give enough calories that she needs, but they will adjust that.
Other than that, she looks good, her skin looks good, she can cough up and clear her lung very well. Also she can breath through her nose, bypassing the teach. Pretty soon they will train her to breath on her own take out the trach, then she can talk. The speech terapist has started working with her already.
So everyday she has so many people come in and out of her room. Tomorrow, the ambulance will pick us up to go to the doctor. They will look at her right ankle, the one with cast.
For me, .... hum, to tell you the truth, very fustrated by all these. I fell like having "out of body" experiences because I have neither power nor control of my life. I just get up in the morning and do what I told, I can't make any decision or too afraid to make one. Ardis is taking care of everything. Without her, I am not sure what to do.