Wednesday, September 29, 2010

I can't believe it

Today we took Ada to see her PT. Her nurse was with her while mom and dad were talking with the Nuero Psychologist. It is a crucial time to get everyone together, be on the same page, same schedule, in order to help Ada continue making progress. I am so glad that dad went with us today. The plan is to do fun things with Ada, to make her laugh and learn at the same time.
There are many things that Ada would do with her nurse but not for me. For example, she will pick Cheerio from the cup and eat it herself, but I have to give her Cheerio by hand or she won't eat it. I always tell Ada's nurse that I don't believe it.
And you will never guess what she did today. She got up and walked with the cane. Yes, the cane, with her nurse holding on to her. It is not a typical grandmother's cane, it looks very high tect, with 2 big wheels in the front, 2 small wheels on the back. It let her push and walk with much more control. I did not see it, so I don't believe it. :)
Now we are going to PT every Wednesday. Yeh. Everyone is so excited about Ada's progress.
We also took her to Healthplex to walk on the tract. 8 laps equal to 1 mile. She is able to walk 3 laps now. We still use Guess pass but it would be nice to be able to get her to walk there everyday, especially when it is cold.
So, if you don't have a chance to bid on any preties yet, I will have a couple of round for the Auction later. Anything help

Friday, September 24, 2010

Auction for Ada - Round one

Dear Friends
Thanks everyone who participated in the Auction for Ada last year. After, successfully, auction off have of the donated items, I realized that we paid almost 25% to Ebay. I decided to run the auction myself through my blog Here is how you can participate.
If you would like to bid on an items, or items, you can send me an email, to tell me which item you want to bid on and how much. i will update the highest bid as it come in and will email back to you as well.
There will be a couple of rounds for auction and each will last 2 weeks. I will then contact the person with highest bid to make payment arrangement. A small shipping fee will be added to the final bid as well.
If you have any question, please do not hesitate to email me.
And if you can help spread the word through your friends as well, I would greatly appreciate it.
The Auction will begin on Saturday, September 25th, 2010 at noon and will end on Friday, October 8th, 2010 at noon (Central time).

Monday, September 20, 2010

New feeding tube, new ER

Early this month, Ada' s feeding tube came loose, so we took her to ER. It was not busy and now, instead of putting the temporary tube in her tummy, the can put a new G-tube in there. Ada has G-J tube so we have to take her back later during the week because it was a holiday weekend. The doctor came in to replace the tube and we got out of there in a record setting time; 2 hours.
Later that evening, her new tube came out again, so we went back to ER. This time we met Nurse Ann who is Ada's ER guardian angle. Ann was so happy to see Ada, she doesn't work on the floor but doing administrative work in ER. She get a new tube and pulled a doctor from somewhere to put it in. I knew he was not ER doctor because he was wearing red shirt. Anyway, we got out of there in 45 min. Amazing, isn't it? They also have different size cuffs for the blood pressure machine and it didn't beep that annoying noise. Another thing I noticed was there was a time sheet right in front of each room where the nurse has to sign every half an hour. This way no one would be left unattended for a long period of time. How genius is that? Wonder if Ann has anything to do with this.
Next week, Ada will go back to Therapy, dad and I will go talk to her Neuro Psychologist. We now have a team of therapists and doctors who will come up with a plan to work with Ada. Everyone is so excited to see what Ada can do now.
She continues to make progress, smiles and laughs a lot. Her Speech Pathologist told us it might be time to introduce the sign language to her (and to us).
We take her out as much as we can. It is still warm here but soon it will be Fall. I am gearing up on putting the rest of the donated items on auction. Hope we come up with enough money so we can get membership to the zoo and Healthplex so she have a place to go walk in Winter.