Thursday, April 9, 2009

A piece of Chex cereal

Today Rachael and I was sharing a bag of Chex Mix while sitting with Ada. Rachael has been coming every Thursday to play with Ada. I gave her a piece of small round pretzel, she took it from my hand and put it in her mouth. I was relieved that the pretzel did not make it into her mouth. Rachael quickly told me not to freak out because I was about to get panic. I dug into the bag and gave her a piece of Chex cereal, she took it and put it in her mouth and chewed.
Ok, Ok, it is not like she will start eating right away. She only took a piece if cereal, but it was a good start. At least she still have the concept of putting food in her mouth and chew and swallow. Incredible, isn't it?
She also walks around the house 5-6 laps in the morning and 5-6 laps in the evening everyday.
We also went to Crossroad rehab center for an Augmentative Communication Evaluation. Since there is a clear indication (in my opinion) that she is ready and willing to communicate with us. We will get a simple device that Ada can work with and they teach me a few things I can work with Ada. So far everyone agree that she does not take a command. LOL Nothing new, we've already known that.
It had been a year and I think Ada had made slowly but steady progress. Everyday is a new day and I can guarantee that she will do something that make me smile. Thanks for all the kind words and support that I get from friends around the world. I no longer cry myself to sleep because now I know that tomorrow a small miracle will happen and Ada's smile will warm my heart and I will have a chance give her hugs and kisses and tell her how much I love her.


Anonymous said...

Amen Ponsawani ... each day is a miracle with Ada, and I thank you so much for sharing this with us.

Prayers are being answered, hope is being honoured, faith is being fulfilled! .... God bless you, and Ada and your whole family!!

Susan Turney said...

Hi Ponsawan,
I know it seems as if progress is slow to you but for those of us reading the blog it seems like it's really coming along. I so look forward to your posts because there's always something new that Ada has re-learned. And I can feel your joy at the "seemingly" smallest thing. I know that each of them is huge! The communication device will be wonderful....I can hardly wait to hear what she has to say!!!!!! :)

Anonymous said...

Hi Ponsawani,

Someone else calls you Ponsawani too and I thought I was the only one! Ha! I am static and thrilled as always with all the progress...I think it is marvelous...she began swallowing a few days back and now chewing. Soon she will eat without the need of the feeding tube. Soon she will begin communicating with the device and what would be her first words? Later she will talk. Now she is walking around the house with her walker, then it will be without her walker and then??? Who knows? She will surprise us, I am sure.

Her left side will continue to connect and function better and better each day!

Ponsawani... No more tears, only tears of happiness, my dear Ponsawani. I would give anything to stop your tears! Love and hugs...

Anonymous said...

My dear Ponsawan,
We are still with and always be with you, excited by every step that Ada takes, every mouthful that Ada eats, until the day she walks with us, eats with us and talks to us. Give her another year or two or three... We can wait. Remember that some people take eight years to be back to where they were.
The fact that you have stopped crying yourself to sleep is a big step of recovery. From now you would be crying with joy to see small miracles Ada makes.
And we will be crying tears of joy with you.
Best of luck with the Fund Raising next week.

WonderfulWire said...

So wonderful to hear and I know in my heart that her progress will continue to inspire us all... thank you for sharing with us all :)

Macey Leigh said...

I just wanted to write and let you know that I am thinking of you and visit the blog frequently to check up on you Ada, and to see how you are doing. I miss you much!

cu#1835024 said...

I love Rachel's writing. Ada will be very pleased when she reads all this in the future.

Ponsawan's former post made an even bigger impression. I thought I know you but I realize you are larger than anything I thought you are. Thank you for continuing to open my eyes to life and everything it has to offer.