Despite some set back on therapy, Ada is doing just fine at home. She is calm and looks much happier. Her room and a new bathroom is almost done, just a few works here and there.
Everyday I face new challenge, some set back, some good news, some not so good. I found myself with sweeper in one hand, phone on the other. Sometime I feed Ada and talk to the phone. Yes, lots of phone call to make, lots of people I have to talk to during the waking hour. I am fine, not a complain here, it just a lot of frustrations when the things just "doesn't make sense".
Good new is Ada will start going to RHI Rehab clinic on the north side of town starting next week, with that, she will no longer get help from Home Health Care. I am not sure what is the real reason behind that but they are working to get it back to her.
I start increasing her feeding not knowing that I will run out of her food before I can order more. I had to run to RHI and asked Dr. Lipson for a scrip, faxed it in, so she can get more food. "You are her mom, just feed her" she said. That's make me feel much better.
Calling her Medicaid case worker one day and found out that they still have her address at the nursing home. No wonder we never get anything in the mail and I have to call another case worker because that lady is no longer taking care of Ada's case. I think there are 3 of 4 case workers who are taking care of her case now. The phone list is getting longer and longer.
After this is said and done, I might be able to write a book; "Medicaid for Dummy" LOL. Not that I don't get any help or advice from anybody. Ardis and a group of expert had been following up on Ada since day 1, still, the system had become too complicate and so much had changed, even those expert can't believe what we have to go through to get things done for Ada.
Now, the thing that keep me going is when Ada is laughing at me. Not a real, real, big laugh, but a small chuckles and a big smile. She does that when we sneeze or cough. I cry, but a tear of joy.