I'll hammer "Hamilton" in the evening too. This is the company that suppose to provide Ada with the hospital bed, the wheelchair and the commode. We received a loan hospital bed, the one with the crank so we can raise the bed up and down. By the time I have to bend down and do that, I might just go ahead and bend down to change Ada. My back hurt.
We got the loan commode, the one that can support 300 lbs, 6' 3" man, but Ada is only 98 lbs and 5' 6". It is so big that I was afraid she will fall down the hole in the middle, and it has the bar across from the back and we cannot put it over the stall.
We got the wheelchair that the cushion is about 4" short for Ada's leg, so she can easily slide off the chair. The proper seat belt is also needed.
Well, people always blame Medicaid for slow process, but in Ada's case, she got everything approved very fast, if the request had been submitted to medicaid office, that's it. After 5 weeks and numerous phone calls, we just found out that Hamilton hasn't submitted anything to Medicaid. So my daughter has to sit uncomfortably in her wheelchair, in the commode and I am about to break my back bending down to change her 6-7 times a day.
I always get a comment from friends that I am being too nice, being to patient, being too passive. How can "being so nice" turn out to be such a bad thing. And if people can't keep their words, what the "promise" is for. I did make phone calls to those people. Lots of phone calls that nobody care to listen. ALL I WANT TO DO IS TAKING CARE OF MY DAUGHTER. If I call and have to yell at somebody, I will be so upset that I can't even go to Ada's room. I don't cry in front of her and she knows whether I am happy or sad or mad. Why can't they just do their job, the one that they suppose to do, the one they get paid for to do so I can do my job.
I understand that I have to be an advocate, a voice for my daughter, but I cannot spend times on the phone calling people everyday. I feed her, clean her, bath her, give her medicine, sing to her, talk to her, transfer her from bed to chair, from chair to bed, help her sit up on the bed, make sure she does not fall down from the commode, exercises her legs and her arms (since she hadn't seen the PO and OT for 5 weeks), push her outside around the neighborhood, give her hugs and kisses, tell her how much I love her, oh, and I have to take care of my family too. I realized how much work I have to do if I take Ada home instead of letting her stay in the nursing home, rooming with the 85 years old grandma, I am willing to do all this and willing to spend the rest of my life taking care of her, if I have to.
Sorry for the weenie-weinie.