I know everyone wants to know about this "Big day", the day we took Ada home. It went well, I think. Lots of hug and good luck wishes from the staffs, also lots of paper works before they send her out the door. Finally, we put her in the car and drove home. Since her new room down stair has not finished yet, we decided to put her in her old "Purple" bedroom. When Ada was young, she did not sleep well during the night. One weekend, she went camping with her girl scout troop, I painted her whole room purple and she slept better ever since. Anyway, she looks comfy there, for now, because the room is too small to accommodate everything that she needs.
I have to call and order her food and brief. Terry went to get her medicine. Ardis came with Pizza. We faced a few problems, first, we need to elevate her head while feeding her but she will be sleeping in a regular bed, second, she had learn to lift up her hip and she will slide downward from the seat while sitting up. We tried different chairs. Finally we put her in the massage chair that looks like recliner. Now she cannot slouch and slide and we can adjust the position of her whole body. She is sleeping now, peacefully and I can leave the room knowing that she will not fall out of the chair.
Arthy is happy that Ada's home. He hates going to visit her at the hospital. We all piled up in the bed next to Ada and teasing her. The dogs came by to sniff her and the neighbor came by to welcome her home.
Then she started to have a stuffy nose and cannot breath well. I ran out and get some cold medicine for her. I remembered when Ada was born and a week later, she had a cold. This is like taking a first-born baby home all over again. Crying all the way home from the drug store, I wonder if I am strong enough to carry on, to take care of her, to lift her up from the chair to the bed, to feed her and give her medicine, to clean her up and struggle to dress her, to arrange and get all the care that she needs, to...to...to.....
I came home trying to get her into her bed. I struggled and started crying. Archie told me, "Mom, you can't give up" and he was right, I can't.
Tomorrow, the nurse from home health care will come for a visit. I won't get any help for a while until we get approval from Medicaid. I shoud get 60 hours of help a week, if lucky. On Tuesday, Ada will go back to RHI for out-patient rehab. I think she will be there 2-3 days a week and they will send a van to pick her up. Now that's a great news.
All the nurses and doctors told me that I will do fine with taking care of Ada. I hope they're right.
"One day at a time", and I will try to remember that.