Yesterday we went to the pre-op for Ada at Indiana University Hospital where they prepared the paperwork for Ada's surgery next Wednesday. Ada had been patiently waiting and sitting in her chair while I talked to the nurse and doctor. After two hours, we went home only to turn back to Methodist hospital because her feeding tube came off. And it is Friday afternoon which means it was busy and the Intervention Radiology Department will be closed till Monday morning. Then I have to call them at 7 am Monday morning and beg them to schedule Ada ASAP.
While 2 doctors were working in putting the feeding tube back in her stomach, me and 2 nurses were trying very hard to hod Ada's down. She was mad, scare, and hurt at the same time. I think she almost, almost cry. Unsuccessfully, the doctor had to put the catheter tube in which mean it needs to be replaced later. Exhausting and angry, Ada let me know that she wanted to get out of bed and sit on her chair. She calmly pointed to her shirt and pants at the end of the bed. I put her clothes back on, then she pointed to her shoes and lifted up her feet for me. Then she pointed to the door but we can't go home yet because they wanted her to get and X-ray. The technician was very kind, I think she remembered Ada. The nurses came back and laid on top of Ada. Another round of wrestling with her. I was in tear, no, I really cried.
Keep in mind that by the time we walked into the ER till after X-ray, it had been 5 hours. What did we do in between? Well, we played games on iPad, I blew up the latex glove and let Ada talked with the hand, I folded the papers into airplane, I pushed her back and forth in the hallway in her chair and constantly asking the nurse to get things moving at the same time because last time Ada had water was at 9 am and it was now 6 pm. We both very, very tried.
Finally, I saw Ann Huber, the ER Angle, she came to the rescue. She got us out of there in 15 min. I talked briefly with Ann about why can't they sedated Ada down here in ER and they can't because it is a simple procedure, well, for others not for the fighty, mighty Ada.
The question is Ada will have surgery on Wed and I wonder if she can be sedated on Monday then again on Wednesday.
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This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
A blog dedicated to Ada Silapiruti
for Ada
About Ada
This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
My other blog
Ponsawan, Yui & Ardis
Ada&Mom
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UPDATE ON ADA
9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Ada&Eliana
About Me
2 comments:
Ponsawani,
Oh my dear! One struggle after another.... only because the staff cannot tailor regular procedures and practices to each individual patient according to their situation! It is so sad to hear the canned response without putting any thought to what he or she is saying, without thinking that you are dealing with a human being. So sorry you both had to go through that... I hope that Monday and Wednesday are better days.
Great to see how she definitely communicates what she wants pointing at it! It is amazing how her brain is connecting! Keep us posted. I will have you in my positive thoughts on Monday and Wednesday! Love and hugs, F&M
Gosh, Pons, I am so sorry! So sorry! I am glad that day is over and will be saying prayers for much easier and calmer times for you. My poor friend. I think you are the best. ((((Ponsawan)))) ((((Ada))))
Love to you.
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