On Monday, May 5 th, we went to Clarian West in Avon for Ada's surgery to remove the kidney stones. It is a bit far away from home. Not sure why they sent us there.We usually go to Methodist Hospital here, downtown. Staying at Clarian west is like having a vacation at 5 star hotel. All the rooms are private, very roomy with flat screen TV, DVD player, small fridge and wooden laminate floor. A courtyard in the middle with ponds and waterfall, home of the mommy and daddy duck with 12 ducklings.
The surgery went well, the nurse came out to get me she said Ada was doing good for 45 min. then started throwing a fist. She said may be I can calm her down. I went in recovery room and tell them I've never seen her like this before; kicking and trying to pull all of the tubes that were adhered to her body. I'll be mad too so "Give her some drug" I said.
She was sleepless all night and we had to give her couple more doses of pain killer. She was calmer in the morning, just laid there half asleep. The nurse offer to clean her up and put her on the chair. I went down stair to get some lunch, came back and sat down beside her. Suddenly, her eyes had turn to the right and she did not response to me calling her. Her face was pale, yellow-greenish. I was panic, scare and not sure what had happened to her. I thought I had lost her, again.
They must have call Code Blue. Suddenly 10 people rushed into the room. I sat down and broke down and cried. I called Terry and told him to come, now. They took Ada to the Critical Care Unit, she had a seizure, a big scarely one. Everyone told me she is going to be ok. Finally everything was under controlled. Watching her, laying there, with the an orange plastic tube sticking down her throat, the breathing machine, the monitor that beeps when something is not quite right. They even put a pig lines on her left arm so all the IV and Med can be served at the same time.
I sat down, quietly with pen and my sketch book and started my drawing. It keeps me calm and my mind get busy with something else. I can't be angry or scare or give up. I need to be strong for Ada.
She slept most of the time. Finally, her face turn pink again. Everything is back to normal but I still have the scarely thought sometime. Is it normal for her to have seizure like this or is it because she did not have her seizure medicine for 36 hours? May be the combination of stress and medications that they gave her had caused this? Is there a "How to take care of a love one with severe brain Injury" for Dummy? I hate it when the doctor told me that it is "normal" for a person with her condition to have this. Then tell me all the possible "normal" things that can happen so we can prevent it.
Ada is home now with a hole on her back from the surgery. She is happy and still sleeps a lot. Her nurses rushed in to give her shower so she won't smell like hospital.
May be this is going to be "Normal" way of life for us. I watch "Michael J. Fox" Special on TV. I got inspired by what he said; "Just be happy for what you have". I will try that.
A few nurses at Clarian West were deeply care for Ada. Funny how all the nurses can tell that she gave them "the look" after they came in and mess with her. May be we should stick with Methodist hospital and Dr. Biggerstaff.
I just realized how strong I am and how strong I have to be. Giving up is not the option. Through this journey, I lost a few friends but gain so many.
Now I need a break and will report back when Ada starts walking again.
Bye for now.