Back to Methodist Hospital for 2 am. ER visit again. Her left eye and the area below the newly installed bone flap was swollen and red. She had high temperature and looks uncomfortable, so we came to ER. Many testes, x-ray and c-scan had done to find out what went wrong. It took many hours for Neuro Doctor to come by and look at her. Well, first they just want to give her the anti-biotic and send her back, but I had asked for blood test and her white count was high. They always say that it is normal that she will get some swollen after the surgery. I wish I had been informed about all those "normal" things that could have happened so I don't get panic ad called the ambulance at 2 am. 10 hours later, they decided to admit her, 4 hours later, we arrived at room 5042 on the 5th floor. Private room, big window again, so I get to stay with her. I hope they don't kick us out so soon. I kinna like the view.
It's 9 pm. and the swollen is still there and it looks worse. They think she might get some kind of infection from the surgery. We will have to wait and see. She will get another round of anti-biotic and Neuro doctors should pay more attention to her or I have to go out and make a scene. Remember the movie "Term of Endearment", when mom (Shirley McLane) went out to the nurse station and asked (yelled) for the pain medicine for her daughter (Julia Robert)? Actually, the nurse that we have is so nice and she imediately recognized that Ada is in pain and the proper medicine was given to her right away.
More on that tomorrow. Hope I could report the good news.
Hugs
Ponsawan
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This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
A blog dedicated to Ada Silapiruti
for Ada
About Ada
This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
My other blog
Ponsawan, Yui & Ardis
Ada&Mom
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UPDATE ON ADA
9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Ada&Eliana
About Me
8 comments:
Good morning, Ponsawani,
I hope Ada and you had a good night sleep. Sorry to hear that you are back in the hospital. I am sure everyone will fall in love with Ada and you will not have to make a scene...You are in our thoughts. I know you will have good news when you write again. Enjoy the view! Love and hugs, F & M
Hi Ponsawan,
I check in every once in a while to see the progress. Even though I have never met you or Ada, you are in my thoughts frequently as I'm sure you are in many others.
Know that others silently watch, wait, hope, and love on your journey. I hope that all goes well with Ada and that she gets to go home soon.
Sandy
Ponsawan, I met your daughter a few weeks ago, and have posted on here before but didn't put my name on the comment. I have thought about Ada several times. I hope that she recovers soon and is back at her temporary home. The next time that I am there on my ambulance I will make sure to stop by and say hello. I hope that some day I am inspire people like Ada has.
My peace and love be with you all of your life
Ponsawan,
When I was driving my vanpool to work this morning, I thought this will be a tough Monday because it is dark and glum and I felt like there are so many things to get done at work.
Thank you for reminding me again to open my eyes and adjust my limited thinking. Your everyday is a tough Monday and somehow you made it sounds so manageable. All I have to do is be "present" and "grateful".
I saw Dr. Jill Taylor's presentation on YouTube again yesterday (twice). I understand now that she will support you and Ada from afar. If it took her 8 years to fully recover with the help of her mom, I would expect at least the same time frame for our Ada.
In 2016, I am not sure where I will be but I can see you by Ada's side showing us what a selfless love of a mother can do.
I pray that Ada recovers from the infection completely very soon.
Yui
I don't know you and Ada but you are every day in my thoughts, in my heart...
I don't now why...probably because I feel your courage, your humanity...
Probably because you are an extraordinary mother with an extraordinary daugther...
Probably bacause I have children...
Ada and you are in my prayers...
Dominique
Hi Ponsawan,
I'm thinking of you often and wondering why it is that things like this happen. No one knows the answer to that, but I have always thought and lived by the philosophy that there are few people who are able to turn bad into good. You are one of those people. Don't be afraid to yell, scream and DEMANd the proper care for ADA. She is very lucky to have you fighting for her.
You and Ada are in my thoughts and prayers everyday.
i have been reading you blog and praying for you and ada all this time. you must be strong and you must learn all about situation like yours from the internet and from other patient or families you meet. you must be firm with the doctor learn and ask more than they tell you. pay attention to every detail in ada's appearnece and don't settle for "it's nothing". don't be shy. as i have been in a situation like yours in the past. please tell the doctors to check for bacteria and fungus. all the best. hugs from far away
Hi Ponsawan,
Sorry that I haven't called or left a email for you. I've been in training for the last few weeks and it's pretty strict. We couldn't use cell phones or take showers for 7 days one week, and the other was 5 days without one.
I see Ada has had some more surgeries though. I'm really happy that you pay attention to the little expressions Ada makes. She won't verbally tell you anything so you have to listen in different ways. She will tell you everything.
Always thinking of Ada, helps to remind me that you to need support, along with the rest of your family and friends. So in closing I would like to say.
I LOVE YOU ALL! Stay strong, stay together, never forget, never quit, listen to another, love each other.
DeMarcus Ware
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