Ada's world, according to Ada, only exist on her right side. She does not know she had the whole other side too. It is the combination of a severe damage to the right side of the brain and, I think, because during the period of 5 month with a missing piece of her skull, we cannot turn her or lay her down on the left side. The way that we help her is to approach her on the left side. We rearrange the room so that everyone will come in to the room from her left. Little by little, she will recognize her left side as well, we hope.
Ada's world, according to her therapist, only Ada will dictate what she wants to do and how she does it. She does not take command. If you ask her to do something, and she did, she won't do it again. You have to predict how she will react to certain things and try to get ahead of her. Connie is good at that, she knows Ada so well, I want to take her home with us. After all she is an expert with brain injury patient. Me, I don't fuss with Ada,I don't pick fight with her, not my job, and I just give in too easily. Because....
Ada's world, according to mom, is all about Ada. All I have to do is to love her. Forget about about the past, don't worry about the future, just be thankful that she is here with me.
Hugs
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This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
A blog dedicated to Ada Silapiruti
for Ada
About Ada
This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
My other blog
Ponsawan, Yui & Ardis
Ada&Mom
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UPDATE ON ADA
9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Ada&Eliana
About Me
2 comments:
Ada' world, according to us, is filled with love and faith. Since it began nearly a year ago, Ada has been coming out to us gracefully, beautifully and very slowly. Like a rose that takes time to develop from a tiny bud, and opens one petal at a time. Nourished with the greatest love of all, she will bloom.
Ada's world, according to us, is clearly shown in her eyes. The look in her latest photo tells us all. She will make it. We believe in her.
Ada's awareness is nothing short of a miracle.
I remember when Ponsawan shared those first grim days almost a year ago, when the doctors had little hope.
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