Everyone tell me that seizure is a bad sign, something wrong with the brain or with your body. It sent out a signal to let you know that something is not right. Ada had one on Friday. It is to be expected for people with brain injury that they will have a seizure, sooner or later. Ada was standing on the standing frame when Connie and I noticed that she was shaking and her fingers just curled up. We sat her down and within a minute, she was back to normal.
I call Dr. Callahan and he told me to take her to ER if she has another one, so they can do c-scan. Why wait? I took her to ER, she had another one, did c-scan and found nothing had changed from the last result, got some med and prescription and we went home.
Remember i told you that she doesn't like to be touch on her right side of her body, especially her hand. She was holding my hand most of the time we were there and nurse Glen was able to get a few tubes of blood from her right wrist. At home she let me curled up in bed with her on her right side, I hold her hand and we took a long nap together. It may not sound significant to you, but may be the seizure is the good things. I think her brain is showing some sign of awakening. She is alert when she awake. She shake hand with everybody, keep her eyes on people a little longer and she still laugh when I make silly sound. The bad things are that medicine make her so sleepy and I might have to keep an eye on her at all time, which I don't mind. We will consult an experts later, when we can get a hold of one.
I hope this is good for her, and me.
A friend, Colleen, who is a speech therapist will come and work with Ada once a week. Also a few visit from friends this week; Rachael Watson, Milton Keys, Kirstin Olson and Grant Brown. Go PIKE! Even the nurse-aid, who comes in the evening to help me with Ada's bath, was graduated from PIKE. Oh, and the neuro psychologist at the Rehab also Pike graduate.
A better news next time, I hope.
Hugs
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This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
A blog dedicated to Ada Silapiruti
for Ada
About Ada
This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
My other blog
Ponsawan, Yui & Ardis
Ada&Mom
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UPDATE ON ADA
9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Ada&Eliana
About Me
7 comments:
My dear Ada,
At last, news from you. I have been longing to hear about you. While your mom was too busy to write, I prayer daily for your good progress.
And you are doing well, my angel. You interact more with people around you. I believe that your brain is working hard to rewire itself. I trust your mom's motherly instinct.
Thanks for working hard Ada. Thanks to your mom, your friends and people who help your mom care for you. God bless.
I'm readig everuthing you write and I'm thinking of you.
All the best,
Nena :)
Go PIKE!
Thank you for this post.
Love,
Yui
Hi Ponsawani,
It is good to be back reading your blog. The computer is not all recovered, but at least I was able to log in. I can receive e-mails, but I cannot e-mail. Strange. Mike and I are not too friendly with computers, you know!
I continue to pray every morning for Ada. I too trust your motherly instinct that maybe the seizure is not a bad sign, but a sign that her right side is awakening and rewiring. It is exciting and emotional to read about the naps together, the touching, the amazing love between the two of you!
Stay strong! You will come through all this together and triumphant,I have no doubt in my mind it is just a matter of time...
Go PIKE!
Hugs........
Dear Ponsawan,
I check this blog every day checking for news. I have followed you from your polymer clay days and continue to be amazed by your strength. When I first read of Ada's seizure I too thought of it as a good sign that perhaps something inside her brain is awakening. I think of you and Ada often. Thank you for keeping us posted. I look forward to the day when you and Ada pose yet again for a beautiful picture together smiling, like the one on the sidebar of your blogs front page.
thinking of you all often!
praying for all as well. :)
Hello to you all, I am michael Elizabeth from UK, I want to share this testimony to all of you out there, seeking for treatment for your illness, I had seizure, it was gradually killing me, I went to many hospital for treatment but each time i am treated it goes and then come back again, i was so worried until i met Dr.davismartin on the internet, he told me he could cure the seizure i did not believe him, but since i really needed help i decided to give him a try, he prepare some medicine and sent to me, after drinking it for 9 days i went back for Lab text, it was gone, then i decided to wait for another 6 month, it is now 8 months, the seizure is no longer traceable in my blood, i have be completely treated and cure of seizure, so i am using this chance to tell everybody out there who has seizure or any other illness, to please contact Dr.davismartin, he also has the cure for HIV/AIDS, HERPES, CANCER, ALS AND WARTS and cure for many other Sexually Transmitted Decease STD.if you need his help please contact him on drdavismartin62@gmail.com
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