May be the title should be "Coming Home". Both Ada and I haven't been home for almost 6 month, so it is more like going home, finally. The date is August 27th.
Now we need to prepare the house for Ada since we do not have a bedroom downstairs, we need to remodel the house quite a bit. We might put her upstairs in the master bedroom for a while.
I am learning to take care of Ada full time. I transfer her in and out of bed to a chair and give her a bath. I will also manage her feeding and medication as well. The second is easy, I have plenty of practice already. The first one is killing my back and my legs. Lots of practice will help and I will get stronger and stronger. Ada is helping by putting her weight on her feet during transfer, so I don't have to lift 100 lbs every time I pick her up.
Ada had practiced standing up with PT's help and sitting on the side of the bed by herself for a while. She has to re-learn how to use all those muscles again.
Today dad bought a pair of white sneaker for her and she really like it. It also help keep her feet on the ground when she stand up.
We still working on teaching her to open her mouth, take some food and swallow. It will come, I'm sure. We need to be more patience with her.
If you in town hand have some extra time, I would need some help. You can come sit with Ada during the day so I can go home and get start on cleaning the house, I would greatly appreciated. You also welcome to visit her at home later.
I will try to post more in the future. I know many have read this blog and thanks for thinking of her.
Hope to report more good news.
Hugs
P.S. The boys will get the training this weekend. I'm sure they are strong enough for the job but if we do it the right way, it will be a lot easier than just lifting her up. As a primary caregiver to Ada, I have to be able to do everything by myself. Dad and the brothers will learn how to help me once we settle down at home.
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This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
A blog dedicated to Ada Silapiruti
for Ada
About Ada
This is a blog for my daughter, Ada Silapiruti. Together we will celebrate her life as a good daughter, a good sister, a good student, and a good friend. We will write about her past, her present and her future. Some day when she wakes up, she can learn about herself, about her life, about her family, and about her friends who will continue to love her and support her.
Ada was in a tragic car accident on March, 2008. She was on her way to Broad Ripple to pick up a friend who was drunk but her car got hit by the drunk driver. She is lucky to be alive but suffers a severe brain damage.
Ada is now living at home with her family and her nurses who help taking care of her. She is making progress everyday, small, but a giant step for her. She is able to walk with the walker and eating solid food. She smiles and laughes a lot. Come by to say hello, may be she still remember you.
My other blog
Ponsawan, Yui & Ardis
Ada&Mom
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UPDATE ON ADA
9/20/08
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Now that Ada is home. I will not be blogging as often. She is strong and healthy, not too many things, health wise, to worry about. If you want to visit her, please call me at 640-7096. We should be at home, and hopefully she will get to go to RHI for therapy soon.
6/23/08
We went to see Dr. Callahan today. He is Dr. Jude replacement. Needless to say, they are just the same. May be this is so typical for Neuro doctor to act this way. We had scheduled Ada to have her bone flap put back on Thursday, July 3rd. I was laughing because I used to metion that we will get the best view of the firework display on 4th of July from the roof top of Methodist Hospital and we will be there. Ada will love that. Some say that many patients do get better after putting the flap back on. We sure hope so.
6/8/08
Back at the nursing home now, I trying to learn the new feeding and her med schedule. Ada get a slow feeding from 8 to 8 so when she has to go somewhere, she won't miss the feeding. She actually gains 2 lbs this month. She can communicate through her eyes and she makes all kind of faces to let you know how she feels or what she wants. Can't wait to see what she can do next week.
6/1/08
I made a mistake on my airline reservation, so I will stop in Hong Kong with Yui for a couple of days. I'll be home on Thursday, I promise.
5/15/08
Here is the address for American Village
2026 East 54th Street, Indianapolis, In 46220
If you want to visit Ada, please me a call (317) 640-7096 or call Ardis at (317) 871-4800
I will be gone for 2 weeks but feel free to come by or bring lunch to Ardis
4/4/08
We settled down at American Village this afternoon. She got her private room and they rearranged the furniture just for her. She seems to be more carm and peaceful. Strang place to be for me since I have nerver been to the nursing home before. I hope they take good care of Ada.
4/1/08
Ada moved into room 4039 on the 4th floor today. It is a step down. No monitor in her room which means no more munber to worry about. She is not in critical condition any more. It is more laid back on this floor. I got a roll bed to sleep on. Slepping on the chair for a month, I'm not sure I can sleep well tonight. Tomorrow I will visit a few nursing homes to see if they will accept Ada.
4/1/08
Yesterday they told me that Ada will be moving to 5th Floor, Neuro unit, but she might go down to 4th floor today. Who knows, may be the nurses on the 4th floor heard about the candy. We have to look for the place for Ada to stay after she gets out of the hospital. She can't go to Rehab yet, a nursing home, may be. This is very fustrated and confusing process, I just want to take her home.
She is doing fine today.
3/31/08
It had been a month already and we are still waiting for Ada. She can be completely off the vent or oxygen at this point. This is good for her but we run into the problem that she won't be qualified to go to Seton. We have to find another facilities for her, may be Rehab Center. One thing is, they won't throw her out of the hospital, promise.
Ada moves her right hand and fingers more. I am working on it, she must be tried of hearing me telling her to move her fingers by now.
Various music from several IPods are playing all day. I also read out loud from Win's book, and Abby comes in the evening to read Harry Potter to her.
3/28/08
Friday afternoon and Ada is breathing on her own without the ventilator. The nurse also put her up on a chair. Kudo for Jennifer, she is brave enought to do this with the help of other nurses on 6th floor. Everyone is so happy including Ada. :)
More good news tomorrow, I hope.
3/28/08
She slept well last night, must be some medicine they gave her. This morning she moves her right arms and her right hand more. Left arm will be trapped in the splint off and on all day. She also be able to breath on her own more and more. No word of when we will be moving to Seton.
3/27/08
The brain is still swallon, so no surgery this week. Imagine having one surgery each week, I don't think people my age can handle that. She is strong and fighting. The nurse gave her a bath today, so was sleeping peacefully while I left.
3/26/08
The doctor took all of the staples out of her head today. She was pretty mad, I can tell. They took her down for c-scan, she might get her flap back on her skull on Friday. Which mean another round of staples on her head. Her left arm is getting stiff, so the adjustable cast will be put in her arm to keep it straight. We need to start excercise her arms, other than that, she is pretty much the same, may be more alert.
Seton will have a bed for her pretty soon so we can move out of the hospital. Maybe early next week.
Hugs
Ponsawan
Ada&Eliana
About Me
7 comments:
My dear Ponsawan,
I have been longing to hear from you.
I really feel for you for the hard work you have been and will be doing. Although it's labour of love, but our body does not always co-operate with us. Can the gentelmen at home help you get Ada in and out of bed when they are available?
I wish I lived near you so I could help with physical work at home.
I hope that the transition to come home is smooth for you both and that Ada continues to surprise us with her development.
With much love.
Ponsawan,
You continue to amaze me everyday. You have great courage in the face of all the changes in your life. I know that Ada feels it in you and gains strength from you. Both of you are working very hard each day at RHI and it is beginning to show in Ada's tiny baby steps. Continue to reach out...you are not alone.
Love,
Ardis
Dear Silaparuti Family,
This is the red headed nurse from American Village. I miss all of your bright smiling faces. Especially yours Ardis. I am overjoyed that things are progressing for Ada. I know it can be a long process and very hard on everyone. I have always wanted to leave comments, but I guess I have been too shy. But, I have been a loyal blog reader and have shared smiles and tears with you all. I just wanted to say that I am at home through the week and only work the weekend. I do have a one year old at home with me, but we do everything together. If there is ever a time you need someone, please feel free to contact me, I would love to be apart of Ada's progress. I wish you all the best of luck and love. 289-6746 cell, email: melissa.king0658@sbcglobal.net, Melissa King
dear ponsawan.
i am reading your blog every day and have you allways in my mind.
Could't you keep Ada at the Hospital longer? It seems to me from far away that this place is very good for both her and you. Maybe you can be more assertive? Will she get PHisytherapy at home?
As I have been in a situation like yours in the past, i know that You must demand thing. You seem to me from far away like a very gentle lady. Ada needs you to be mean. Even the kindest Doctor or nurse or the best hospital will give you more if you demand it. I don't live in the USA so i don't know how is it in the health insuranse but you must demand your rights. From what i read in your blog Ada is in a progress now. It seems to me that Augost 27 is too soon. sory if it seems that I'm intefiring with your life. It is from my heart! best of luck.
Hi Ponsawani,
The progress is great news! The coming home as you know better than anyone, is too soon, but you do not always have a say in certain situations. I am sure something good will come out of this and she will return to Rehab as needed and at the right time. You have always had the strength and the perseverance for everything in your life and I have no doubt that everything will be easier than what you imagine! Stay strong and keep going.
Hugs,
F and M
Dearest Ponsawan,
I am concerned about your back and your health though I understand that they have been teaching you how to lift and support Ada correctly. Again I strongly suggest you do Yoga. The stretch and deep breathing will help heal your muscle injury and soreness. You will have that 20 minutes quiet time to meditate and heal both metally and physically.
August 27th is only 9 days away. I wish Daniel and I live close by so we can lend our hands on renovating downstairs for Ada. I pray that progresses happen the way you plan.
I am moved by the image of Daddy with the new while shoes for his girl. Please tell Piak I say Hi.
Love,
Yui
PS: Nathan is back at ECU and recently broke his left foot. Though he will have his cast (to under his knee) for another 6 weeks, he is active with his RA job. Unfortunately accidents happen all the times.
Ponsawan,
I am willing to help in anyway I can. Feel free to either call me or email me at 417-2117; jennifer.mulder@gmail.com
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